I suffer from: Chronic late stage Lyme/Neuro Lyme and co-infections for 33 years now. I was misdiagnosed for 32 years until this past December 1, 2017 I discovered a great team of (ILADS) certified Lyme Dr's. here in my area. At this point I couldn't walk from the horrible shocks of pain that radiated up and down my legs and into my lower back, my gut, colon, both arms and head for three months without stop. Since that day I have been treated with "aggressive antibiotics", herbal protocols, supplements, organic foods, and alalkaline water. Since nothing Lyme related is covered, I've spent thousands out of pocket on this treatment... Visits are out of pocket, all Lyme meds, blood work, exc. if Lyme related, it is out of pocket. Without help I can not continue my care... IT HAS LITERALLY STOPPED ME FROM LIVING!!!! I CAN'T DO ACTIVITIES, OUTDOORS OR INSIDE. I CAN NOT BE IN THE SUN OR HEAT. I CAN BARELY WALK FROM THE WEAKNESS MOST DAYS. I REFUSE TO TAKE NARCOTIC/PAIN PILLS THAT JUST COVER/MASKS THE PAIN TEMPORARILY. This condition has taken so much of my life away from me. I have finally had to let go of my career of 26 years and have become completely disabled in the last 13 years. I’m not able to do activities I love such as being outside, being active with my children, friends, family and even walking my dog. I now am trying desperately to do what I can with Lyme -Neuro Lyme and co. to find the best options for both a holistic and western approach to my care. With the money raised from my campaign. I’ll be able to continue my care and put the funds towards a doctor that specializes in this condition, a daily protocol, as well as other medical bills that have become a huge burden. I miss life and I'm tired of having to watch everything and everyone from my bedroom window. I want to wake up not scared of having to live this life.
I was diagnosed with: Chronic/Late-Stage/Neuro Lyme and Lyme Disease-Borrelia Burgdorferi and Co-Infections (CO's) include Babesia, Epstein Barr Virus (EBV), Protomyxzoa Rheumatica, Lupus, Primary Immunodeficiency, RSD/CRPS, Postural orthostatic tachycardia syndrome (POTS), Gastroparesis (GP), Fibromyalgia (FMS), Insomnia, IBS-D Chronic Fatigue Syndrome (CFS), intestinal parasites, Radiculopathy, herniated Discs in my neck & back C5-C7, Spinal Stenosis (neck), Hypothyroidism, carpal tunnel, Insomnia, IBS-D... Along with MOLD ILLNESS - The term "mold illness" is a subcategory of Biotoxin illness called Chronic Inflammatory Respones Syndrome (CIRS). My LDL and HDL are highly outside normal levels from Lipoprotein Genetics DNA. Liver counts are at a dangerous level. However, a large portion of these systems have all been reduced in the last five months while on the current protocol... If you feel led and would like to donate, I truly thank you from the bottom of my heart. If donating isn't something you're able to do, please share this and know that I appreciate it so very much... Robyn Leigh