My story is very long, so I’ll try to condense it as much as possible and share more details as this fundraiser progresses. I have always had several major medical conditions, but since my hysterectomy four years ago, my health has continued to diminish into more diagnosis and two rare conditions affecting every aspect of my life, including how they are able to treat or not treat me. I am currently fighting POTS (postural orthostatic tachycardia syndrome) and MCAS (mast cell activation syndrome). This is on top of vonwillebrands, migraines, endometriosis, anemia, pcos, pid, arthritis, post concussion issues, irritable bowel, mthfr gene mutation, estrogen dominance, adrenal fatigue, and leaky gut syndrome. It is suspected that I also have small intestinal bacterial overgrowth and hyper mobility Ehler Danlos syndrome. Since I had a major reaction to a Breo a few years ago on top of all of this, I have been unable to drive or work outside my home. I use a walker as needed and have to monitor every environment I’m in for multiple triggers. My body reacts to most normal stimuli and even low levels of stress in ways that lead to anaphylaxis. I have to stay home most of the time and my husband has become my care taker when he is off of work. In order to get proper diagnosis and treatment, we fought through many ill informed doctors and medical systems, and then maintaining the treatments I need out of pocket to maintain my body at a semi normal level, we have drained our funds down to our retirement savings. It has been recommended by most of my doctors that I see a functional medicine specialist who is the head of his field and specializes in people
With my combination of issues, in Tennessee. His name is dr Potter at functional medicine sanctuary. He should be able to do further testing and options to balance my hormones, help me be able to control mcas better and eat more than the five foods I currently tolerate, and lower my pain levels. However, none of this is is coveted by insurance. I was able to raise the initial consultation $600 and had a visit with his intake NP/PA. We now believe it’s definjtely a good fit. Treatment for six months is $3475 plus the costs of all lab works, testings, and prescribed therapies. We would need travel costs for special accommodations as well. my body is tolerating less and less and we need to see this specialist to hopefully have hope for me to not only survive, but to thrive again. We have exhausted nearly every option locally that our insurance will cover and would love to get me back out into this world again, especially to be able to even have my body tolerate spending time with my family members. Just you reading all of this is appreciated! your share would be wonderful and we covet your prayers as well.