On my journey of finding normalcy and health once again, i’m looking to friends, family, and even the kindness of strangers to lean on in this trying situation.
Six years ago in 2012, I began getting flu like symptoms that proceeded to get worse by the day. After seeing my doctor many times only to be told it was normal and nothing to worry about, things continued to go downhill. At this point, I was getting violently ill multiple times a day and rarely left my home because I could never be too far from a bathroom. My work suffered, my social life tanked and I was left beginning to feel hopeless. Finally after a year of total confusion and misdiagnosis and constant sickness, I was diagnosed with severe Ulcerative Colitis; an autoimmune disease categorized as Pan-Colitis with inflammation throughout my entire colon.
From there, it became a mix and match cocktail of steroids and anti-inflammatory drugs to no avail. While having a compromised immune system from the Ulcerative Colitis, I contracted Clostridium Difficile which is a devastating bacteria that requires a costly antibiotic. And while it did kill off the C.Diff, it alsoy nuked any remaining good gut bacteria. With my back against the wall, I applied to be in a clinical drug trial that required several weeks of tests and meetings. Getting far into the process, I felt a sense of hope for the first time in a long time, but I ended up not qualifying. Feeling lost, I turned my attention to things in my control, like my diet, trying Paleo, Gluten Free, Whole 30, and Plant Based. This had some impact until a really bad flare up that put me in the hospital for 8 days in July 2016. While hospitalized, I was on an IV of biologic drugs originally created as chemotherapy treatments for cancer. These drugs are EXPENSIVE and have a litany of side effects.
Since my diagnosis, I have lost 35 pounds from my inability to properly digest food. Painful bowel movements with blood and mucous are happening daily on a double digit level. My colon has open bleeding ulcers which causes incredible pain, nausea, brain fog, lethargy, and the inability to properly process food and water. My risk for colon cancer is 20% higher due to the colitis. Despite eating a whole food plant-based diet, no alcohol, no caffeine, and powerful pharmaceutical drugs I have not been able to get in remission...
If anything things have been going continuously downhill, and my doctor has pushed for trying another biologic drug or removing my colon via surgery. The side effects of this would be devastating including needing a colostomy bag, a greater risk of infection, and an increased chance in developing additional autoimmune diseases. Essentially, these proposed solutions would only treat the symptoms and not the root of the issue, and would merely be bandaids until the next flare up occured. I want to truly heal my colon. And to that end, I have researched medical journals,and scouredonline forums from health and wellness communities to Facebook groups and everything in between to find some form of reprieve.
Anormal day for me includes a restless night of waking up every two hours to use the bathroom, vomiting in the morning, and constantly running to the toilet (despite not eating in the morning or while at work). The byproduct of having poor sleep and a difficult morning leads to no energy and brain fog, which makes being productive and efficient incredibly difficult. Only mustering the hunger for one meal at the end of the day is still hard to do as its painful to digest that food in my inflamed ulcerated stomach. Once I do go to sleep, I know it won’t be for long as the Colitis is most active at night and in the morning, and the cycle repeats.
They say it is darkest before the dawn, and I truly believe I’ve found a path towards remission through FMT treatment, which is not currently available for my condition in the United States or Canada. As such, these treatments must be administered at a medical institute in Baja California, Mexico called Baja Medgate.
Baja MedGate is an integrative group of medical doctors, oncologists, scientists, and other health professionals working together to orchestrate the most effective treatment program possible per patient on an individualized basis. This is something I’ve never tried before and I have great faith it could be the treatment I’ve been seeking for the last six years!
Because this therapy is not approved in the US, it is not covered under any form of insurance, which is why I need help in order to fund medical costs, my travel, and other supplemental fees associated with this treatment. I am so grateful to all my friends and family who have stuck with me through my illness and constant flare-ups. I am hopeful that this treatment will not only get my UC in remission, but it will also give me my life back. Thank you for listening to my story and your consideration in helping me fund my cause.